I want us to stop leaving children with special educational needs and their families out of the conversation about what is best for them. I want families facing long waits for diagnosis to be supported, and for it to become crystal clear to policymakers that SEND is a portal to poverty for too many families.
I want us to stop trying to push the narrative that one size fits all and that mainstream school is somehow the silver bullet. It isn’t and the pressure on schools to provide care for children who have complex needs is so great. It cause fractures in support for the families of those children.
Children with SEND are often ostracised in school settings and the community we need to help our children develop disappears because of the misunderstanding around unmet needs. Without support, such as asking for help around childcare from other parents, we can’t work properly, we can’t be consistent, and we can’t reach our own full potential. Supporting our children shouldn’t be this hard.
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I want school staff and professionals to appreciate that the experience of parenting a child with additional needs is isolating, and we have not done this before. It is so hard.
We have appointments to attend. We are called into school, almost daily in some cases, to collect our children or to work out what’s going on with them. Our employers often do not make allowances for this and we lose our jobs or something has to give.
We face social stigma, our children face this too, daily. And ultimately their academic progress takes a back seat as we fight hard just to help them get support to be ready to learn.