Bertie Kay is no ordinary six-year-old. The Merseyside school kid has Ullrich congenital muscular dystrophy – which means his muscles are progressively getting weaker. It’s an extremely rare condition with no cure that will eventually spread to Bertie’s lungs, and taking on any sort of physical challenge is incredibly demanding.
But that isn’t stopping brave Bertie, from Southport, taking to the tracks at the Queen Elizabeth Olympic Park in London next month to take part in the world’s first inclusive push/run event, Parallel London, to take part in in the 1K Sensory Challenge to support AbleChildAfrica.
The inspirational youngster is determined to help disabled children in Africa to go to school, and believes everyone should be able to go to school with their friends even if their bodies don’t work perfectly.
“I’m going to Olympic Park and I’m going to win a medal to show my friend James, and take to ‘show and tell’ at school,” Bertie said. “James doesn’t have a wheelchair but I do. That’s okay. He doesn’t mind. I would be sad if I wasn’t allowed in the classroom.”
Now in its second year, Parallel London takes place on Sunday, September 3. And Bertie can’t wait to take on the Super Sensory 1K challenge.
— AbleChildAfrica (@ablechildafrica) August 16, 2017